Friday, November 3, 2023
HomeHealth LawFTC Enforcement In opposition to Sharing Shopper Well being Data Continues

FTC Enforcement In opposition to Sharing Shopper Well being Data Continues

On March 2, 2023, the Federal Commerce Fee (“FTC”) introduced an enforcement motion towards California-based on-line counseling service BetterHelp, Inc. (“BetterHelp”) for allegedly sharing shoppers’ well being info, together with delicate details about psychological well being challenges, for promoting functions in violation of Part 5 of the FTC Act.

This newest enforcement motion comes only one month after the FTC introduced an enforcement motion towards GoodRx for allegedly violating Part 5 of the FTC Act and the Well being Breach Notification Rule (“HBNR”). The place the GoodRx enforcement motion marked the primary time the FTC enforced the HBNR, the BetterHelp enforcement motion equally units a brand new precedent for the FTC: That is the primary FTC enforcement motion returning funds to shoppers whose well being info was compromised by BetterHelp’s alleged misdeeds. The proposed order (“Proposed Order”) additionally units out intensive necessities to ban BetterHelp from disclosing well being info for promoting and misrepresenting its info sharing practices. The GoodRx and BetterHelp enforcement actions look like half of a bigger effort by the FTC to observe the practices of internet sites, apps, and linked units that seize client’s delicate well being info.

The Grievance

In keeping with the Grievance, BetterHelp presents on-line counseling providers by matching customers with BetterHelp therapists and facilitating counseling through BetterHelp’s numerous web sites and apps. BetterHelp additionally presents specialised variations of its counseling providers for individuals of the Christian religion, members of the LGBTQ neighborhood, and youngsters. To join BetterHelp’s providers, shoppers should fill out a questionnaire that asks delicate psychological well being questions, comparable to whether or not they have skilled melancholy or suicidal ideas, have beforehand been in counseling, or take any drugs. Shoppers additionally present their identify, e mail deal with, beginning date, and different private info. In its press launch on the enforcement motion, FTC suggests that buyers are “pushed’ to supply this info by “repeatedly displaying them privateness misrepresentations and nudging them with unavoidable prompts to enroll in its counseling service.” Shoppers are then matched with a BetterHelp counselor and pay between $60 and $90 per week for counseling.

The Grievance alleges that in recognition of the quantity of delicate well being info shoppers present, BetterHelp “repeatedly promised” to maintain this info “personal and use it just for non-advertising functions comparable to to facilitate shoppers’ remedy.” Nevertheless, over a interval of seven years from 2013 by means of 2020, BetterHelp purportedly “frequently broke these privateness guarantees, monetizing shoppers’ well being info to focus on them and others with commercials” for BetterHelp’s providers. For instance, BetterHelp allegedly shared its customers’ e mail addresses and the actual fact they had been in counseling with Fb, which in flip recognized comparable shoppers and focused them with BetterHelp commercials. BetterHelp additionally allegedly shared its customers’ info with different third-party promoting platforms, comparable to Pinterest, Snapchat, and Criteo. These promoting efforts reportedly introduced in “tens of hundreds of latest paying customers, and thousands and thousands of {dollars} in income” to BetterHelp. BetterHelp additionally allowed these third-party corporations to make use of BetterHelp customers’ info for their very own analysis and product growth, additional proof that BetterHelp didn’t contractually restrict how third events might use shoppers’ well being info.

The Grievance additionally alleges that BetterHelp “didn’t make use of cheap measures to safeguard the well being info it collected from shoppers.” BetterHelp is accused of not coaching its workers on how one can correctly shield person info when utilizing it for promoting functions and never overseeing its employees’s use of person info.

The Proposed Order

The Proposed Order imposes a $7.8 million nice on BetterHelp, to be paid right into a fund, to refund shoppers who signed up and paid for BetterHelp’s counseling providers between August 1, 2017, and December 31, 2020. The FTC reviews that that is the primary enforcement motion looking for to return funds to shoppers whose well being info was compromised. Along with the financial penalty, the Proposed Order prohibits BetterHelp from sharing customers’ “individually identifiable info referring to the previous, current, or future bodily or psychological well being or situation(s)” with third-parties for promoting or re-targeting earlier customers. Additional, the Proposed Order requires BetterHelp to:

  • Get hold of customers’ affirmative specific consent earlier than disclosing private info to third-parties for any objective;
  • Set up, implement, and preserve a complete privateness program that features sturdy safeguards to guard client info;
  • Direct third events to delete the patron well being info and different private info that BetterHelp revealed to them; and
  • Restrict how lengthy BetterHelp retains private and well being info in accordance to an information retention schedule. 


Digital well being corporations and different corporations that function web sites, apps, or linked units that seize client’s delicate well being info ought to take heed of the FTC’s enforcement actions towards each BetterHelp and GoodRx. As evidenced by the BetterHelp enforcement motion, corporations should safeguard person info and never endeavor to leverage this info for promoting alternatives in violation of guarantees made to shoppers. The BetterHelp enforcement motion additionally underscores the necessity for acceptable person notification mechanisms to acquire person consent earlier than disclosing their info to 3rd events. Additional, corporations ought to recall from the GoodRx enforcement motion that even corporations that aren’t topic to the necessities of the Well being Insurance coverage Portability and Accountability Act might nonetheless be topic to the HBNR. Whereas the FTC didn’t allege violations of the HBNR by BetterHelp, additional enforcement motion might nonetheless be looming.

The BetterHelp enforcement motion is particularly noteworthy as it’s the first time the FTC has endeavored to redress client accidents for these whose delicate well being info was inappropriately used and disclosed. That is the FTC’s second “first” within the space of well being info enforcement within the span of only one month, so corporations needs to be looking out for extra to return.

For extra info or recommendation relating to this enforcement motion or information privateness points generally, please contact the skilled(s) listed beneath or your common Crowell & Moring contact.



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